When you have a rare disease it’s a really scary feeling knowing you know more about this disease then most doctors and nurses. You want to feel safe in a hospital setting surrounded by doctors not more frustrated and more concerned. Well Friday night I went to the ED. For me, like many chronic illness […]
Hi Superheroes! Chances are you have a gastric emptying study (GES) scheduled and like me, prior to mine, you have no idea what to expect. Your doctors can only tell you so much since they didn’t undergo it. So here I am to tell you all the details! I did not get the results yet, […]
Hi Superheroes! I cannot believe it’s already October. The days feel long but the years feel short right?! Speaking of long days it’s so important to share with you superheroes 10 healing things I do daily to get me through the day (mentally & physically) I incorporated these things during a dark survival mode era […]
Living with chronic illness can feel SO isolating & misunderstood. From the outside looking in it’s hard to understand and from the inside looking out it’s extremely hard to explain all the depth. Chronic illness is so hard especially when it’s invisible for people to grasp the intense symptoms and hardships one goes through on […]
Hi Superheroes! Welcome back to my blog. I have a feeling you want to know a thing or two about my health journey. 😉 I grew up with a rare disease where I didn’t know any different and then got diagnosed with a life changing illness in 2020 followed by a third diagnosis that manifested […]
Hi Superheroes! I share so much on my instagram stories I need to remember to share a lot on my blog too!! Blogs are good for detailed stories and oh do I have a story for you. My goal for January is to add a lot more blogs on my site. This is a realistic […]
Hi Superheroes! I don’t like to say “how are you feeling?” because that is such a tough question to answer. So instead I am going to say I hope you’re having a low symptom day. Chances are you’re here because you or someone you love need to start biologic infusions! I remember how nervous I […]
Traveling while having a chronic illness comes at a cost. Traveling takes an extra toll on your sensitive, strong, but tired, flaring body so here are some tips & tricks for you to refer back to next time you’re traveling! Traveling puts such a strain on my body and the morning of my flights I unfortunately […]
The world is opening back up but our chronic illnesses are here forever. It is so crazy yet so comforting to hear other Superheroes (chronically ill warriors) are also upset or scared the world is reopening. No more 6 feet distance? Actually having to cancel plans again? More Fomo? Fomo hits differently being chronically ill. No more […]
At age 5, I was diagnosed with a rare disease. I grew up thinking the way I lived was normal, despite the differences from my friends. Then last year, at 23 – in the middle of my social and school life – I was diagnosed with a second forever illness. Over the past 19 years […]
