Hi Superheros! I am Alexis aka Lala, by looking at me you would think I am the average 24 year old, but as you probably know- looks can be deceiving. I live with two severe auto inflammatory diseases that have more control over me than I do over myself. 

At 5 years old after many misdiagnosis and hospitalizations I got diagnosed with a rare genetic disease called Familial Mediterranean Fever. I missed over 100 days of school each year in Elementary and Middle school, and lost a lot of friends due to them not understanding my sudden changes in plans. I got verbally bullied so much to the point, I had to switch schools. 

High School was a life changer literally, I barely missed school and my flares started to get less and less. I still would have to cancel on fun plans, I still would be home sick not able to get off the couch or my bed, but I definitely would say I was more healthy than sick. Same with college, I attended a college 45 minutes away from my house, because I had to. I wanted to experience college life yet still had to stay close to home in case I had a bad flare my family, my doctors, and my hospital would be close by. In college I joined a sorority (Alpha Delta Pi!!!) I was finally living a life with my health being manageable until...

My last year of college turned upside down and the life as I knew was not coming back. I got diagnosed with severe Crohns disease. Living with one illness you think thats your story, thats your life, you never expect to get diagnosed with a second. But I did. 

I feel that FMF and Crohns ingrained in me a responsibility to help those who are struggling realize that rainbow days are coming. Yes chronic illnesses are forever however its not all bad days. We WILL have good days. 

~ Alexis Kleinstein


Invisibly Sick Lala

Avocado toast

Stretching and or walks on the beach

Baths with epsom salt

Thanksgiving

favorite holiday

favorite food

facts

favorite way to move

favorite self-care

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A wonderful serenity has taken possession of my entire soul, like these sweet mornings of spring which I enjoy with my whole heart. I am alone, and feel the charm of existence in this spot, which was created for the bliss of souls like mine.

Travel

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A wonderful serenity has taken possession of my entire soul, like these sweet mornings of spring which I enjoy with my whole heart. I am alone, and feel the charm of existence in this spot, which was created for the bliss of souls like mine.

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